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Hey eliza gofundme1/12/2024 Money doesn’t make the world go round, but it does bring medical treatments faster to children who are dying. At this stage, funding is one of the only things that will accelerate research to give these children a chance. She is a fighter! Other Sanfilippo children deserve this chance too. She is working to regain the skills the disease stripped away in the 6 and half years it tore through her body. Since treatment, we see a new light in Eliza’s eyes- she is connecting with us in a way we thought was gone forever. Can you imagine being one of these parents? Given the rapidly degenerative nature of Sanfilippo Syndrome, not receiving a treatment, and soon, is a death sentence. There are more children that need this treatment than there are available spots in clinical trials, and these precious little ones can’t wait. Many more children are still fighting, and we won’t stop until every last one of them is afforded a chance at life. The WORLD decided to rally around our little girl for this greater cause, and she’s become the face of this disease…a symbol for Sanfilippo parents everywhere not to give up HOPE. Diagnosed 3 years ago with Sanfilippo Syndrome -a terminal disease sometimes called “Childhood Alzheimer's”- Eliza has now become the first child in the world to have been given this new treatment! The second child has also been treated and in the coming months & through next year, a few handful more children around the world will be part of this groundbreaking gene therapy clinical trial that is already showing promising results. What else can explain more than 36,000 people already donating more than $2 million dollars, over the past 2 years, to fund a chance at life for our daughter Eliza and other children. Now, we truly believe we are witnessing a miracle. It all started back in 2014, with this 3 minute video: You are our hero! Glenn O'Neill (Dad, Donor and President of Cure Sanfilippo Foundation) (anytime) Our deepest and humble thanks for visiting this page and considering support. We tell individual stories, for the greater cause and mission.which is to cure this terrible fatal brain disease in little children, often referred to as a Childhood Alzheimer's. No dollars ever go to or for any particular family or child. In short, we fund research to save children via treatments & clinical trials. Cure Sanfilippo has a mission to advocate and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome. Please visit the new page at Every single dollar raised here has, and continues to go to Cure Sanfilippo Foundation, a 501c3 nonprofit (tax ID: 46-4322131). The campaign on this page is no longer accepting donations due to GoFundMe changing payment processors. He is constantly improving his skills through trading of techniques and critique with fellow photographers.Please visit our new campaign to continue supporting the fight for children with Sanfilippo Syndrome. His work primarily consists of weddings, commercial and editorial. Robert Hall is a professional photographer in Southeast Michigan. To see all the other great work, check here: Use this link to purchase my favorite image and help support the cause, and get some great wall art in the process. To see the complete story and current progress, check out the gofundme page at. Eliza is a 4 year old diagnosed with Sanfilippo Syndrome-Type A, and the next few months of treatment are extremely important in giving Eliza a quality future. We have come together to sell our prints in various sizes, in order to raise money for Eliza O'Neill. Just wanted to share a wonderful cause that talented photographers around the world and I have taken part in.
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